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Patient-focused endpoints

Patient-focused endpoints are outcomes from medical care that are important to patients, such as quality of life. In other words, the care experience is viewed through the eyes of patients and their support groups to ensure that their concerns are also addressed.


More information about patient-focused endpoints can be found here:

IRDiRC Recommendations and guidelines for the development of patient-centered outcome measures from the International Rare Diseases Research Consortium (IRDiRC)