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ASTERIX project meeting April 2016


From April 18th until April 20th, the ASTERIX researchers met in Hannover for the 6th ASTERIX project meeting to discuss the progress of the project. On the 18th, everyone got (re-)acquainted with each other whilst enjoying a typical German buffet.

Tuesday the 19th started with presentations from all work package leaders, who gave updates on their progress. Then some young researchers presented a new idea for additional research on combining endpoints. In the afternoon session, scientific presentations about rare disease registries, design techniques, orphan legislation and preliminary results from the meetings and interviews with the Patient Think Tank were given. The day ended by yet another excellent working dinner at the Altes Rathaus (Old Town Hall) in the centre of Hannover.


During the morning session on the 20th, the scientific presentations on various topics like multiple endpoints, discrete endpoints, sparse data, empirical priors and basket trials continued.

After lunch, a proposed ethical framework for rare diseases research was presented and in two interactive sessions, all researchers were invited to comment on this proposed framework.

After thanking the organization, everyone left to go home, full of inspiration and enthusiasm to continue and improve their work!