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Patient Think Tank

On the 26th and 27th of October, 2014, the first meeting of the ASTERIX Patient Think Tank took place. Among its members are patient representatives in the area of (rare) cancers, Duchenne muscular dystrophy, MPS, AKU, Pompe’s disease, Hemophillia, PSC, Cystic fibrosis, and Fragile X, as well as a representative of EURORDIS.