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Research projects

More information about research projects about drug development in rare diseases can be found here:

InSPiRE In the InSPiRE (Innovation in Small Populations Research) project, the focus will be on the development of novel methods for the design and analysis of clinical trials in rare diseases or small populations defined, for example, by a rare genetic marker
IDeAl The objective of this research is to produce methods of general applicability irrespective of indication by Integrated DEsign and AnaLysis of clinical trials in small sample population groups (IDeAl)
IRDiRC The International Rare Diseases Research Consortium (IRDiRC) is a consortium of research funding agencies and interested parties acting to accelerate research through collaborations
E-Rare The E-Rare consortium was built to link responsible funding organizations and ministries that combine the scarce resources for rare disease research and thus enable the participation of many researchers to international projects
RDCRN The Rare Diseases Clinical Research Network is made up of 22 research consortia that are working together to improve availability of rare disease information, treatment, clinical studies, and general awareness for both patients and the medical community
ClinicalTrials.gov Overview of current and past clinical trials