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First Patient Think Tank meeting


Sunday the 26th  and Monday the 27th  of October 2014 the first meeting of the ASTERIX patient think tank took place. Among its members are patient representatives in the area of (rare) cancers, Duchenne muscular dystrophy, MPS, AKU, Pompe’s disease, Hemophillia, PSC, cystic fibrosis, and Fragile X, as well as a representative of Eurordis.